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France: CNIL announces role as authority on data altruism

On June 21, 2024, the French data protection authority (CNIL) announced its role as the competent authority for data altruism.

What is data altruism?

CNIL clarified that data altruism is the voluntary sharing of data based on the consent given by data subjects or the authorization granted by data holders for the use of data, without compensation. Data sharing must serve objectives of general interest such as healthcare, climate change mitigation, improving public services, or scientific research.

What is the role of CNIL?

CNIL noted that it has been the competent authority for data altruism since the entrance into force of Law No. 2024-449 of May 21, 2024, aimed at securing and regulating the digital space (SREN), transposing the Digital Governance Act (DGA) and the Digital Services Act (DSA).

The DGA aims to facilitate the circulation of personal data but does not affect data subject rights and obligations under the General Data Protection Regulation (GDPR).

In addition, CNIL provided that its responsibilities include:

  • maintaining and updating a national public register of altruistic organizations in terms of data; and
  • investigating complaints made against altruistic organizations and monitoring them.

You can read the press release, only available in French, here.